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The Jeffrey Journey
by Helen Baldwin
EXCITING NEWS!!!
Thanks to mind-boggling support, the Gwendolyn Strong Foundation earned 6th place in the Chase Community Giving Facebook campaign and $100,000 for SMA research, on top of the $25,000 award for reaching the finals!
Thanks to all who helped make this possible....
The Special Dedication
From The Jeffrey Journey:SMA’s intense, wicked path of destruction begins with the pronouncement of the diagnosis and prognosis of this killer disease. There is no end.
It seemed fitting to include a dedication to those whose lives have risen to the challenges of SMA, so I began gathering names and permission to publish them. With relatively minimal effort in the beginning, hundreds of names surfaced, and hundreds have been added on a regular basis since then... until there are now more than a thousand. Hundreds more.
The ‘relatively minimal effort’ required for the first collection of names quickly graduated to a passion, and some might say it’s eased into an obsession. I couldn’t disagree.
This simple tribute recognizes a mere handful of those who have somehow paid their dues for involuntary induction into the world of SMA.
Only the first names or initials are listed if I was unable to contact the families and/or procure permission. They are by no means slighted in honor or memory.
Sincere thoughts and prayers are extended to the families of those who earned their wings after this printing and to all newcomers to the family of SMA.
Congratulations to the families and individuals with SMA who demonstrate such tenacity and gusto in life, particularly when they shift the focus to the needs of someone else. What an amazing group.
I am proud to be a part of this family.
Contact Info - Name(s) Submission
There are currently over 1000 names in the Special Dedication for the upcoming revision (below).
I am always taking names for the dedication. If you would like to submit a name, please let me know how it should be listed, including a nickname if desired, and specify whether it belongs in the 'honor' (living) or memorial section. Also, please let me know if there are any changes that need to be made (i.e., name or location of name).You may contact me at:
jeffreyb@skybest.comFacebook (book) / Facebook (personal)
Helen Baldwin
P.O. Box 964
Jefferson, NC 28640
Thank you for sharing this with other SMA families!
PLEASE READ - IMPORTANT UPDATE INFO!
1-7-10
Due to circumstances beyond my control, the revision process this round has taken enough turns to be right back at Square One. While I'm very disappointed that the book wasn't ready when it should have been (translation: when I wanted it to be!), I am satisfied that angel intervention has been at work. More information will be coming soon.
I am always accepting names for the dedication and have already started adding names while I wait for things to fall into place. There obviously has to be a deadline for each revision, though, and the deadline for guaranteed inclusion in this edition is 2-7-10.
If you would like updates regarding the book's availability and ordering information, please start checking back here around the latter part of January/first part of February, or send your email address to me at jeffreyb@skybest.com to be placed on the mailing list. Updates will also be on this site, the book's Facebook page, my Facebook page, The Suite Life of Lucy and Ethel (blog), SMASpace, SMA Support, SMA Friends, FSMA, Fight SMA, JTSMA, Kennedy's, and wherever else I can remember to go as time allows:)
PS - This is just the online version of the dedication. In the book, there are only 1-3 names per line (i.e., it is much easier to read!). Consider this the working copy - mostly for SMA families to check... and for others to get a tiny idea of just how many are affected by this 'rare' disease.
A Special Dedication
...to honor those
living with SMA...
Samantha (‘Sami’) Abraham * Mariana (‘Marianis’) Moreano Acevedo * Makayla ('Kaykay') Adams * Mariah ('Yahyah') Adams * Rhonda Dee Adkins * Aila * Brooke Alexis-Lynn Akers * Faith Ann Akers * Gabriella (‘Gabby’) Marie Aleman * Crystal Allbritton * Mar Álvarez * Victor Alvarez * Samantha (‘Sam’) Marie Amend * Suzanne LaPrise Ammons * Roman Walker Anderson * Isabella Andrade * Bradly Alan Andrews * Malena Angelini * Mallory Armbrustmacher * Devin Tyler Arnold * Rosana Arteta * Anita (Amy) Ashdon * Amanda Ashton * Iceis Danielle Augustino * Laura Janice Bairett * Jensen Elizabeth Victoria Baldwin * Lauren Ball * Emma ('M&M') Mary Banach * Nikki Barker * Alexis Barr * Karah Elyse Barry * Julia Maria Bartczak * Joseph (‘Jojo’) Brady Baudin * Angela (‘Angie’) Bebee-Wright * Sawyer Beechler * Laura (‘Lala’) Begic * Samuel Bell * Carlos Emanuelle Benejam * Kelsey L. Bergbigler * Carson Andrew Berry * Cooper Anderson Berry * Lisa Bertolini * Grace (‘Gracie’) Elizabeth Bertram * Lauren Marie Biancucci * Mary Kate Bigelow * Christian Bilbay * Alexander (‘Alex’) Gabriel Billerman * Victoria (‘Tori’) Rose Billerman * Aschdon Lorenz Birkle * Chessa Rose Marko Birrell * Larkin (‘Larkie’) Bish * Morgan (‘Yady’) Riley Bishop * Alex Blair * Lielén (‘Lee’) Blasini * Halsey Blocher * Krista Bodzo * Jenna (‘JJ’) Boguhn * Jerika Bolen * Alex Bolton * Eleanor Bolton * Jack Bolton * Sam Bolton * Ryan Cooper Bonsett * Jerry Book * Jennifer Bordelon * Sarah Borowski * John J. Bottone, IV * Evan Breton * Patricia May Bristow * Michael Brodsky * Greg Brooker * Trevor James (‘TJ’) Broton * Maxwell Brown * Ryan Andrew Brown * Samantha A. Brown * Ashley Bruner * Dwight (‘Buddy’) Bryan * Adyn Kassidy Bucher * Dustin James Bucholtz * Aiden Scott Bundy * Kelly Buonaccorsi * Joanna Emma Buoniconti * Logan (‘Logie’) Bailey Burch * Jane E. Burdette * Samuel Burnett * Dwayne Burrwell * Chloe Bush * Garrett (‘GB’) Allen Buthe * Kyle Donovan Byrd * Lauren Chelsea Byrd * Pranav C. * Brianna Mariah Cagle * Shelly Rachel Cahlon * Michael (Owen) Cain * Hayden Christine Calafiore * Adam Calderwood * Corinna Elizabeth Calise * Roberto Camiro * Tambryn Ember Campbell * Isabel Michelle Campos * Courtney Paige Canfield * Falon C. * Alba Blasco Carbonell * Mary (Beth) Carollo * 'Carolyn' * Jamey Carrington * Christopher Cassel * Alyssa Castagna * Crystal Cevallos * Li-lee Cha * Malachi Chapman * Jocelyn Chen * Kalei (‘Toot’) Danae Chisholm * Josy Chow * Ella Christopher * MayMay Chun * Jerry W. Clark * Lucile Clavier * Kenneth Lloyd (‘K.L.’) Cleeton II * Mary Cobley * Lindsay Kaitlynn Cochran * Emily Nicole Coddington * Jane Coggins * Jonas Coleman * Ta’Bria Neosha Collier * Brianna Connelly * Veronique Conner * Kristen Connors * Jimmy Contento * Amadaya Cooke * Holly Cooper * Malik A. Cosby * Kerri Costello * Ryan Cottor * Rebeckah (‘Beckah’) Courdt * Carrie Cowgill * Julia (‘J-Girl’) Swan Cramer * Sydney C. * Kristina Creekmore * Andrew R. Creighton * Miranda Cremeens * Neil Crosswaite * Katelyn (‘Katerbug’) Rose Crowder * Blanche Cuba * Joshua Cueter * Dylan Jack Cuevas * Jada Cusick * Selena Cusick * Jeremy Dack * McKenzie L. Damon * Khalil Dana * Alexandria (‘Alex’) Hope Darce * Jo D’Archangelis * Jonathon Meyers Davies * Casey Wayne Daws * Alexa Dectis * Isabella Del Campo * Connor DeLuca * Jack DeRooy-Harris * Pierina Naori Miyadi Diaz * Ariana Leigh Dindzans * Ares Jun su Dobson * Samantha Giovanna Dodaro * Sophia (‘Pumpkin’) Karin Doebbert * Sydney ('C-Bug') Madison Landry Donovan * Kaylee ('KiKi') Shae Dorfman * Michael (Gray) Dougherty * Debbie Drake * Drew John Drazenovich * Morgan Duffy * Charlene Dumont * Kaige ('Kaigers') James Russell Dunham * Brendon Dupree * Alexandria Dzimitowicz * Amanda Eads * Cody Edwards * Hunter Edwards * Natalie Edwards * Daniel (‘Danny’) Egan * Skylar (‘Sky’) Eichele * Hanna Eide * Nisar Elahi * Anita (‘Anix’) Eleonora * Taylor Renee Ellington * Austin Michael Elliott * Peyton (‘Beauty Girl’/‘Pey’) Lola Elsner * Tyler Engel * Colin Joseph English * Jaxon Jeremy English * Tabitha Michelle English * Greyson Shepherd Erwin * Cassandra Victoria Evans * Ruth Everard * Kindal Patricia Evers * Sierra (‘C. C.’) Journey Factor * Maxime Paul Famin * Ray Fantel * Fionna Faroon * Aileen L. Farrell * Alexa (‘Seccy’) Caitlyn Felix * Héctor Álvarez Fernández * Cole Kaycee Fiedler * Alexis Fifelski * Leah Finch * Sam Fisher * Shira (‘Little Miss Boops’) Fisher * Austin Blayne Fitch * Henrik Fjelde * Jon Fleming * Joshua Joel Fletcher * Racquel Flores * Barry Lee Fodor * Cindy Ann Fodor * Howard H. Y. Fok * Kaleb Folbrecht * Edmond Fordham, II * Ashley Lynn Fox * Malorie Alexis Fox * Bernadette Francois * Jennifer Franey * Matthew Franey * Eve (‘Evie’) Darian Frederick * Jack Freedman * Haley (‘Boo Boo’) Brianna Freeman * Lauryn Freundl * Haley Frieler * Morgan Rose Fritz * Emily Rose Gallagher * Thomas Gallagher * Leanne M. Gallipeau * Alivianna ('Ali') Brighid Gallup * Montse Font Garcia * Zachary Gardner * Addison ('Addy') Grace Garner * Janna Gates * Jennifer Gaudreau * Sophia (‘Pooka’) B. Gaynor * Jack Gellner * Amira Lilliana Sky George * Arturo Charles George * Lauren Elizabeth Geraghty * Claire Gibbs * Lauren Gibbs * Zachary Aaron Gilbert * ‘Giorgos’ * Tom Giumelli * Melissa Jane Gleason * Christopher Golden * Elisa Golden * Emma Hope Goldsberry * Austin Goluba * Nora Madison Gooden * Jacob Christopher Goodson * Zoe Graffam * Christie Grande * Bailey Grant * Aubrey Jeanne-Marie Green * Sara Rose Greene * Ryan Gregory * Zoe Grisez * Tanner (‘TanMan’) Grover * Suellen Groves * Kyle Gundy * Nicholas Gustafson * Yvette Haas * Elizabeth Lee Hallam * Ragnar Emil Hallgrimsson * Destiny (‘Dezi’) Hamilton * Hugo Hammarin * Lanie Elizabeth Hannah * Kaitlyn Harapchuk * Mackinley Hardison * Michaella (‘Micah’) Gene Cysouw Hargrave * John Harris * Abbey Lee Hassel * Garrett Steven Hassel * Kaitlyn Hatchard * Karl Hatt * Douglas (‘Doug’) Hayes * Kameron (‘Kam’) M. Hayes * Mark D. Healy * Ann Heathcote * Silvana Helliwell * Kaelan Bradlee Henry * Karlie Miya Henry * Nathan Herman * Tyler Hernandez * Jessica Elizabeth Hetzel * Patrick Higgins * David Hile * Richard F. Hill, II * Sunni-Louise (‘Sunni-Lou’) Hind * Videl Skye Hinke * Shelby Hintze * Ashley Hodges * Jaclyn (‘Jackie’) Quinn Hoffmann * 'Hol' * Connor Holdsworth * Sydney Alyse Horak * Evelyn (‘Evie’) Horton * Lexx Michael Howell * Dave Hughes * Mia Danielle Hultgen * William Huntley * Joshua (‘Baby J’) Hurd * Taryn Barbara Hussey * Oliver Philip Huston * Linh Thi Huynh * Quoc David Huynh * Haylee (‘Miss Anne’/‘Hayleekins’) Hynes * Reagan Imhoff * Alexa (‘Dumplin’) Ivey * Meg J (‘MJ’) * Lisa Jahn * Cooper M. James * Chloe ('Peanut') Ann Jamieson * Ludmila Javurková * Isaac Jessee * Brandon James Johnson * Jami Johnson * Landon (‘Mister Wister’) Robert Johnson * Owen Johnson * Reilly Blake Johnson * Charley (‘Chazza’) Marie Johnston * Kazi (‘Kamakazi’) Mark Johnston * Christopher Jones * Dana (‘My Smiley Girl’) Lynn Jones * Daniel (‘My Handsome Guy’) Thomas Jones * Dayton A. Jones * John L. Jones, II * Vivianne Heather Jones * 'Juana' * Austin Riley Jumper * Vicki Lynn Jurney-Taylor * Corinne Kagan * Kasey Kaler * Jennifer (‘Jen’) Kariman * Keanu Kauwe * Julia Katherine Kay * Melanie Keefer * Christoph Keller * Jacqueline (‘Jacquie’) Marie Kelley * Michael Kelley * Morgan (‘Princess Morgan’) Joyce Kelly * Brielle G. Kennedy * Brooke A. Kennedy * Allison P. Kerns * Heather Kerstetter * Allegra (‘Leggy’) Keys * Che Hun Kim * Heather Kimes * Allison Renea King * Bradley (Austyn) King * Easton E. King * Brett Kingsley * Nicole Kinzel * Kelly Kirchstein * Kyle Kirk * Megan Kirk * Ingrid Klein * Derk Kok * Ron Kort * Jack Kotheimer * Alyssa Kotsopoulos * Christel Alexina Kotte * Ewa Kozak * Allyson ('Angel Ally') Krajewski * Alyssa Krider * Bella Ksontini * Addison (‘Addy’) Kuester * Brian Kupferschmidt * Holly M. Kupferschmidt * Victoria (‘Tori’) Lacey * Daniel Marc Lajoie * Jessica Faith Lamb * Scarlett Rose Landefeld * Anna Landre * Taysen (‘Taye-Taye’) Langstraat * Tonje Larsen * Peter Laudan * Michelle Laverdiere * Emily Hope Lee * Jocelyn Paige Lee * Jessica Lehman * Angeles Aracely Leon * Zeke Lerner * Shaun Michael Lesniak * Adora Brooke Lewis * Antonio Eric Lewis * Ian Paul Lewis * Satori Lewis * Sierra Rae Lewis * Matt Liegel * Tommy Lim * Julia Lincoln * Jack Thomas Lindaman * Justin Linn * Jamie Lino * Troy Lino * Gabriella (‘Gabbie’) Rose Lisacchi * Brynlee Belle Liston * AnMei Liu * Emma Ruth Lockwood * Nicholas James Lockwood * Charlotte Florence Lohner * Nicole Lomonaco * Caitlin Long * Jackson (‘Jack’) Long * Carlos ('GTA Charlie') López * Ian Lopez * Samantha Lorey * Benjamin Lou * Dakin Lovelace (SMARD) * Summer Luke * Llarell Alejandro Hernández Luna * Sofia Anne-Marie Lynsdale * Jeffrey Macak * Hayden Phillip MacIntyre * Taylin Amily Mackay * 'Maddalena' * Vivianna Madera * Bryce Madsen * Tara Ann Mahoney * Jennifer Malatesta * Carolyn Malloy * Brooke Ashley Malone * Ryan Maly * Austin Alan Manning * Linda Napolitano Manning * Cody Mannion * Ryan (‘Ryno’) Matthew Manriquez * Ariyana (‘Nanna Bug’) Marcel * Rachel Markley * Karen Gaseni Marlow * Amy M. Marquez * Jesus (‘Chuy’) Alexandro Marquez-Harper * Alexander (‘Alex’) Marshall * Micah (‘Moocher’) Paul Marshall * Alexandria Martin * 'Martin' * Shawn Martin * Elena Gomez Martinez * William Thomas Mason * Lori Matthews * Yuliya Matyushenko * Jonathan Maul * Danae Maxwell * Preston Maxwell * Shayla Maxwell * Danielle Maycox * Nathan Mayer * Courtney Jeanne Mazzella * Skyler McAdams * Mark (‘Marco’) McCarthy * Melissa (‘Mo’) McCreary * Emily Jean McCulley * Brianna McDanel * Natalie ('Little Bear') Christina McDonald * Rachael Marie McDonald * Kiley McDonnell * Patrick McDonnell * Taylor McDonnell * Aaron J. McGirt * Daniel Joseph McHale * Jillian McIntosh * Bernie McKeough * Tierney Lee McKown * Fred McLees * Ava McLin * Deirdre (‘Deedee’) Medina * Shane Megale * Brandon (‘Brando’) David Meinke * Isabella Melara * Hayron Mérida Friman * Madisyn (‘Madi’) Alon Mevissen * Marianne Middlebrook * Kennedy Migchelbrink * Anna (‘Souslik’) Migrina * Inés Bravo Miguel * Melissa Anne Milinovich * Aleena Hope Miller * Alyssa Miller * Bruce Michael Miller * Jenica Mae Miller * Kalei Ann Miller * Katelyn Jeaneane Miller * Leah (‘Beantsy’) Jean Miller * Katie Mirabile * Haley Christiana Mitchell * Annah Nikole Mobus * Rev. Richard A. Moe * Mary Elizabeth Montague * Joshua (‘Josh’) Monteiro * LeAnna (‘Princess LeAnna’ / ‘Anna Banana’) Reneé Moore * Ben Morris * Jon Morrow * Lindsay Marie Muench * Vivien (‘Fish’) Mullett (sister to Rebecca Mullet & aunt to Ruby Gilbury) * Destiny A. Muniz * Austin Emerson Munro * Erin S.A. Murakami * Garrison Murph * Connor Murphy * Eric Murphy * Michael P. Murphy * Maryann Musselman * Lindsey Renee Muszkiewicz * Joseph Michael Myckaniuk * Preben Myhre * Pratyush Nalam * Kim Napiwocki * Thomas Narum * Lilyán Navarro * Syeda Shagufta ('Shaguf') Naz * Laura Nellen * Ben Nelson * Brady Nelson * Colby Nelson * Grace Nelson * Jodi Nelson (& Juni, service dog!) * Mary Grace Nelson * Kaitlyn Nguyen * Paige Caroline Nixon * Johnny Noblett * Daniela Noboa * Tyshan ('Ty') Malic Norman * Mikaela Rose Norris * Mariella Norris-Garcia * Dianne Pollie Nuell * Karen Maree O’Brien * Shannon O’Brien * Ethan James Och * Chelsea ('Sweet Pea') Bleu O'Donnell * Christopher Ogden * Riley Ogden * Amelia O’Hare * Conor (‘Ginger’) O’Kane * Austin Olander * Jeffrey Olander * Jonathan G. Olivares * John Olson * Shane Oltmans * Casey Eugene O’Neill * Colin Robert O’Neill * Jennifer Onsum * Steve Onsum * Gayle Ortega * Julia Marie Ortego * Pamela M. Ortego * Peggy Sue MacKenzie Overbey * Melynnda Overholtz * Álaysha Alvarez Pagán * Hunter Christian Pageau (SMARD) * Irina (‘Ira’) Parfionova * Cheyenne Parra * Madison Parrotta * Jack William Parry * Tori Nicole (‘T. Cole’) Partee * Kaitlyn Debra Johanna Pas * Marina Paskina * Charles (Logan) Patrick * John (‘Chef John’) Pawula * Holly Payne * Katherine Pecora * Aul Pedajas * Thomas ('Tommy') Hart Pence * Kimberley Pendergrass * Camie Perez * Ameila Rose Perry * Autumn Kay Persinger * Michael (‘Mikey’) Pezzuto * Aaron David Phelps * Jay Pierce Phillips * Nicholas ('Nick') Piazza * Morgan Pierce * Danielle (‘Meimei’) Seah Xin Ping * Paolo (‘Underrunner’) Pisano * Avery (‘Miss Beautiful’) Pitzen * Robyn Marie Plaster * Mark Plocharczyk * Chaz Podolnick * Patie Polczyk * Tyler Pollock * Isaac Reed Postma * Sydney Grace Potjer * Vita Potocnik * Steven Nicholas Potter * LaMondre Pough * Kelli Prather * Gerrit Ivan Pretorius * Colby Pretz * Hannah Nicole Price * Maya Pringle * Danielle (‘Dani’) Pruitt * David Gregory Pruitt * Cole Pulkrabek * Margaret (‘MJ’) Purk * Zachary Peyton Pylychuk * Caiden Lee Pynenberg * Augusto Maria Quatrini * Natalie Marie Quintana * Sam Rader * Caitlyn Eleanor Radocy * Jacqueline Radtke * Jessica Radtke * Logan P. Ragland * Peter Jerry Ramirez * Jasmine Rankin * Noel Ratapu * Venla Raty * Elizabeth A. Raymond * Nicholas J. Raymond, IV * Madison Rose Reed * Connor William Reilly * Pamela (‘Pam’) Patricia Renshaw * Camilita Reyes * Ava-Isabel Kekaimalie Rezentes * Sam Rice * Kelly Richardson * Melissa Richardson * Brett Richter * Karson Michael Riggs * Kathy Riley * 'Riley’ * Vincenzo (‘Vinny’) Rini * Shanice Robertson * Trevor Allen Robinett * Alexa Rodriguez * Gerardo ('Jerry') Rodriguez, Jr. * Nuris Rodriguez * Brian C. Ronningen * Courtney Brooke Rosas * Ross Cory Rosenfeld * Bernie Ross * Ana Marcela (‘Marcy’) Rubio * Charles (Cosmo) Rudd * Cael Charles Rudkin * Karlson Russell Ruhle * Minouche Manon Ruiz * John (‘Jay’) Runkle * Savanna Rush * Lindsay Marie Russell * Nathan Edward Russell * Thomas Daniel Russell * Jacqueline S. * Joshua S. * Sébastien St-Jean * Veronica Rose St. Onge * Jesana Saksi * Marisol Saksi * Cory Saldana * Katherine (‘Kate’) Saldana * Kayla M. Samz * Destiny (‘Princess’) Hope Sanchez * Brooklynn Rae Santos * Jackson Saville * Samuel Thomas Sawyer * Jake Saxton * Brittany Jean Saylor * Kendra Nicole Scalia * Kevin William Schaefer * Nicole (‘Nicci’) Schauerte * Samuel Schoenborn * Sarah J. Schwegel * Anna Rose Scurria * Joshua Scurria * Sara Mackenzie Seavers * Steven Bret Sebastianelli * Rayanna Jane Seffens * Kavya Sehgal * Alexander Ayres Sequeira * Ashley Elizabeth Sequeira * Olena Sh * Brandon Shaffer * Sohum Shah * Brandon Jacob Shaklee * Gunn Aas Shaw * Charlotte Sherwood * Maddison (‘Maddi’) Elise Ronnie Sherwood (SMARD) * Brooke Shetler * Kale Robert Shiesley * Emma Grace Shifflett * Thomas Shindle * Maia Shockley * Nolan Ostin Shofner * Bama ('Jam-Jam') David Shore * Isabella (‘Izzy’) Maria Sicoli * Morgan James Sidor * Abraham Silva * Maliylah (‘Lil Miss’) Imani Silva * Arya Channeng Singh * Andy Sinish * Regan Dean Sink * Andrew Slay and his ‘Buddies’ * Jacob Cole Slaymaker * Sarah Jane Smallpiece * Courtney Lynn Smith * Deanna Smith * Joanne (‘Joie’) Smith * Joseph Bennett Smith * Kristen Smith * Madison Smith * Riley (‘Smiley Riley’) Smith * Roswitha (Anne) Smith * Sheila Smith * Kyla Snelling * Laurie Sore * Hannah Soyer * William (‘Billy’) George Spiegel, Jr. * Susan Pedersen Spingler * Ethan (‘E-Man’) Isaac Spivey * Jake Stamper * Larry Stauffer * Stan Stauffer * Lynn Otterness Stern * Amber Kristin Stewart * Lynsey Stewart * Kristen (‘Little Girl’) Still * William Stocker * Whitnee Lana Stoddard * Charles Stopford * Paige (‘PJs’) Jayden Stout * Gwendolyn DeBard Strong * Philip J. Struble * Skylar Swanson * Danny Sweetman * Michael Sweetman * Helen Elizabeth (‘Betsy’) Neel Swetnam * Katherine (‘Katie’) Kirby Swetnam * Addison (‘Addi’) Swims * Charles (‘Charlie’) Robert Sykora * Joseph Szumigalski * Angelo Szychowski * Ethan (‘Mommy's Little Chicken’) William Takacs * William Tamiso * Elizabeth (‘Lizzie’) Tanner * Patrick G. Tansey, Jr. * Alonso Gabriel Tapia * Mandy Lucieal Tawn * Alex Telenson * Alana R. Theriault * Jade Hailey Theriault * Kyle Thomas * Rhylee Thompson (SMARD) * Meredith Tokar * Franca Tomasella * Julio Chojeda Torres * Leopoldo (‘Leo’) Anthony Tortora * Hannah Michelle Rose Trail * Ayden Dale Trammell * Haydon Travers * Gina Trotto * Adri Truter * Farzana (‘Faca’) Tsabita * Apollonia Tsanta * Radmila Turanjanin * Stella Turnbull * Sam Turner * John Leslie Tuss * Arynn Tyrrell * Ezamudin (‘Ezam’) Umat * Far'ain (‘Paah’) Umat * Gazlia (‘Lia’) Umat * Amy Urbanski * Marco (‘Tesoro’ - treasure) Antonio Valverde, Jr. * Rebecca (‘Bex’) Grace Van Fraassen * Jacqueline ('Jackie') Van Herk-Kennedy * Holli VanderWyk * Kayla Grace Vanderzanden * Babbe Vanneste * Lia Renee Cobos Varela * Flor Maria Vargas * Matthew Varney * Amanda Velez * Lisa Velez * Kennady J. Verbsky * Steven Verdile * Madison (‘Maddy’) Alexandra Versuk * Ryan (‘Ry’) Christopher Viano * Serenne Vikeboe * Madison (‘Madi’) Villegas * Leah Vogedes * Bentley Jo Vondrak * Jaycie Rene Vondrak * Kennedi Marie Vondrak * Peter Voskovitch * Patricia (‘Pat’) Agnes Walden * Taylor Rae Wallace * Matthew Avery Wallis * Kerry Nicole Walsh * Jacob Waltier * Matthew Warren * Callie Mae Watkins * Blake Watson * Matt Watson * Cubby Wax * Christopher Bruce Weber * Evan David Weise (SMARD) * Tessa Marie Weisenberger * Lyza Jane Weisman * Kayden (‘Chunky Monkey’) Faye Marie Wente * Kelly Webb Werdin * Olivia Werstein (and best friend forever, Erinne Rose Williams) * Dinand van Werven * William (Tyler) Wester * Karen Wheeler * Sean Patrick Wheeler * Peter R. Whitaker * Ryan Michael White * Gideon (‘Gus’) Dalton Whittamore * Essie Whitteker * Erinne Rose Williams (and best friend forever, Olivia Werstein)* Sacha Monet Williams * Hanna Reagan Willingham * Jessica Willis * Terry Willoughby * Todd Alexander Willoughby * Alexis Marie Wilson * Brett Jacob Wilson * Bryce David Wilson * Gidget Kerrington Winward * Nikolas John Winward * Margrett ('Meg') Witkowski * Martin Witkowski * Madison Wolff * Alvy Wong * Elizabeth Ann Wood * Melissa (‘Lisa’) A. Woods * Adam David Woodson * Jessica (‘Fusser’) Joy Wosika * Bethany R. Wright * Carmen Yau * Victoria Yenzer * Jonathan Tiong Soon Yi * James (‘Jay’) Allen Young * Lucy Jean Zahn * Stacy Lee Zoern
* * *... to remember those
who have earned their wings...Deirdre Ann Abraldes * Trinity (‘Petunia’) Elizabeth Aguilar * Lindsay Suzanne Alexander * Eric Harrison Alford * Dustyn (‘Doo-nut’) Edward Boyd Amaral-Hicks * Benjamin (‘Benjimano’) M. Amiss * 'Amy Sue' * Isabella (‘Bella’) Ann Anderson * Kyleigh Mae Anhorn * Ami Ankilewitz * Kathryn Rose Anthony * Sofia Victoria Aracena * Nicki Allison Ard (Miss Wheelchair America 2001) * James (‘Jaime’) Thomas Armstrong * Tracy Lynn Armstrong * Henry (‘Hank’) Anthony Ashdon, Jr. * Tonna Louise Winter Ashdon * Mary Jane (‘My Lady Jane’) Tesch Ausse * Hailey (‘Sugar Bear’) Michelle Aversman * Jordan Azar * Lauren Miah Azar * ‘Baby Angel’ * Sean Christopher Bacon * Skylar William Bahrenburg * Beth Bailey * Jeffrey Thomas Baldwin * Zoey (‘Baby Zoey’) Lee Banschbach-Russ * Bella Mia Barberena * Callum Anthony Barker * Neil (‘Little Neil’) Barker * Lily Barnett * Nathan Barnett * Colten Michael Barnicle * Jonathan Peter Barzach * Bentley ('Boo') Bassamore * Luigi Estevao Batirola * Emmy Rose Baugher * Jennifer Marie Beachnau * Eli Beasley-Wright * Courtney Elyse Beauchesne * Tylah Millicent Bell * Jeanette Avery Benejam * Justin (‘Bubba’) Wyatt Berge * Richard (‘Rik’) Lynn Berkenpas * Martina Paz Berlin * Jacob Berrier * Milla Charlette Bevis * Ruby Bianchi-Hobbs * Brooke (‘Pumpkin’) Leigh Binning * Maggie Wyn Bonesteel * Matthew C. Bonnell * Lily Emma Boots * Lainie (‘Lou Lou’) Grace Border * Taylor Kate Bowser * Joseph Paul Box * Paul Joseph Box * Marcello Brandao * Landyn Edward Dean Breiner * Allie (‘Baby Allie’) Brenner * Mitchell ('Baby M') John Briggs * Barbara Ann Bristow * Kinsey Bronston * Makalia Renee Brown * Tiffany (‘Tiff’) Marquis Brown * Seán James Browne-Keating * Johnathan Boyd Browning * Montanna (‘Monty’) Jean Brownlaw * Zarlee Rose Brownlaw * Jonathan Brunetti * Kelsey (‘Kelsemanneke’) Bruynseels * Kyle Raymond Bry * Michelle Buchman * Emma B. * Celia Lolly Bultemeyer * Annabelle (‘Belle Boo’) Rose Burfitt * Ethan Burnett * Grant William Burns * Owen Michaelis Burns * Andrew (‘Andy’) Glenn Butler * Caleb William Butler * Mark S. Butler * Audra Claire Caine * Felipe Thadeu Antunes Calegari * Kelsey Campagna * Braden (‘Tumbleweed’) Ray Campbell * Hannah Jean Campbell * Alex Camwell * Michael (‘Mikey’) Anthony James Capper * Ian (‘Buggaboo’) Carleton * Alex Michael Raymond Carter * Daniel (‘Danny Boy’) Cevallos * Maddox William Nasedo Chance * Ms. Ngai Kit Ching * Ke’aja Tiaris Chisholm * Ilsa Mae Chowaniec * Ashley Christianson * Penny Louann Claar * Kendra Michelle Clark * Michael Keith Clark * Nicholas Roman Clark * Riley London Clark * Saria Wynelle Clark * Taylor Michelle Clark * Vickie Lynn Clark * Grace (‘Sunshine’) Dyan Coggin * Belle Colchester-Hall * Curtis (‘Curty’) Chandler Cole * Mary (‘Pooh’) Coletti * Riley Shawn Comeau (‘Brother Bear’ to Brie & Matti, SMA-free) * Lilly Robyn Conlan * Tiernan James Conner-Park * Colin Matthew Connor * Kalani Akiaten Connoy * Beau (‘Chooker’) Coogan * Tahj Akeem Cooke * R.J. Corradino * Taylor Chase Costa * Charlie (‘Charlie Bear’) J. Cowan * Grant Craig * Lindsay Craig * Tina Creed * Ashley C. Creighton * Gavin Patrick Crews * Phoenix Lee (‘Our Cheeky Monkey!’) Crocker * Danella (‘Danie’) Cruz * Shane Alexander Curry-Williams * Peter Dack * Samir Abbas Dahouk * Ava Grace Dancel-Paguio * Madison Kate Darlington * Valerie Rose (‘Rosie’) Davies * Adam Michael Davis * Fernando De Andrade, Jr. * Karsten Anne de Boer * Kristin DeBonee * William Defendiefer * Jessica Mary DeLong * Sophia (‘Sophie’) Marie Denk * Rebecca Diels * Emily Laura Domzalski * Michael (‘Our Little Man’) E. Doyle, Jr. * Gracie Duke * Ashley Elizabeth Dukes * Kendall Elizabeth Dukes * Kelly (‘Baby Girl’) Grace Durham * Brody Durocher * Connor Mathew Dykman * Justin Cameron Dykman * Douglas Sawyer Eberhardt * Amy Catherine Edgerton * Bethan Louise Edwards * Warren Edwards * Taleah Louise English * Samuel (‘Sam’) Robert Stirling Everard * Lewis (‘Looby Loo’) James Farmer * Hannah Grace Fehn * Jessica Irene Fernandes * Darcy Field * Andrew (‘Booper’) Richard Fimbel * Herman Fischer * Preston Trask Fisher * Mason Alexander Fleck * Shannon Fogard * Courtney Erin Foley * Eden Kathleen Foley * Bridget Raylene Forstall * Maranda Rose Forstall * Heather Dawn Frazee * Jacob Ryan Frazee * Payton James Freeman * Isabella Brynn Freilicher * Bill Freiwald, Jr. * Lauren Furr * Rhiana Gallagher * Gabriela Guerrero García * Kathryn (‘Katie’) Louise Gardner * Dallyce Joy (‘DJ’) Gartner * Adrianne (‘Sis’) Elaine Gayman * Nicoletta Maria Genna * Alison George * Malia Simone George * Lucia Ana Gerden * Alejandra Gervais * Jordyn Theresa Gianessi * Hampton Clyde Gilbert * Ruby Elizabeth Gilbury (niece to Vivien & Rebecca Mullet) * Christian James Gillen * James Patrick Giroir * Emma Glander * Kaylie Elizabeth Goddard * Brookes Gordon * Joshua Gordon * Bryan James Gould * Serena Autumn Graham * Connor Edward Green * Daniel Green * Emily Norma Green * Marissa Rose Green * Brittany Leigh Griffin * Patrick Timothy Griffin * Charlotte (‘Char Bar’) Elizabeth Grillo * Marley Ann Guay * Mark Jacob Guilfoile * Matthew Guinta * Jamie Olivia Haapalainen * Jacob (‘Jake’) David Haenel * Cain (‘Mommy’s Little Soldier’) Peter Halstead * Britta Elise Halvorson * Connor T. Haney * Thomas C. Haney * Lucas Stephen Hannigan * Dustin James Hanson * Mia Jasmin Haq * Logan ('Logibear') James Harman * Nikki Renee Harms * Amanda Kate Harris * Misti Rose Packlaian Harris * Gavin Michael Harvey * Shania Jo Hasselman * Ryan Michael Hawn * Miss Wong Wan Hei * Nicole M. Heimann * Claire Altman Heine * Taija Heinonen * Mitchel Daniel Henneberry-Robar * Aimee Hernandez * Sarah Martínez Hernández * Korbin Blaine Hicks * Ravyn Cae’lynn Hill * Mitchel (‘Peanut-Boy’) L.R. Hirsch * Chelsea Hogan * Jacob Blake Holden * Katie Ann Holland * Jack Buckley Hoogstraten * Andrew Craig Hooker * Daniel Ryan Howard * June Marie Howsden * Colten (‘Squishy’) Hughart * Daniel Blake Humphrey * Lorraine Frances Humphrey * Ally Cadence Humphries * Miss Dao Thuy Huong * Brook Taylor Hurst * Jumaana ('The Silver Pearl') Ibrahima * Bethany Ann Irvine * Cody Michael Irvine * River (‘Rivie’) Sky Isherwood * Jonathan Jaffe * Jet James * Scott (‘Pooder’) David Jarrett * Joseph (‘Baby Joseph’) Bradford Jean * Autumn (‘Bright Eyes’) Rose Marie Jeffery * Tristan Edward Jentzsch * Amy Lynn Jerome * John Xhedrick * Jacob Andrew Johnson * Miranda (‘Randa Panda’) Elaine Johnson * Audrey Lynn Jones * Bronwyn Kate Jones * Christopher (‘CJ’) Matthew Jones * Duncan McArthur Jones * Connor Landon Jumper * David Stephen Jurkovich * Michelle Faye Justice * Ms. Lai Kan * Kala’i Kauwe * Madisyn (‘Madi lu’) McGee Kemp * Lilian ('Lily') Eileen Kennedy * Molly Louise Kennedy * Emma Lauryn Kindig * Connor King * Denise Renea King * Jeanetta Louise King * Jamee Lynne Kinney * Shawn Edmund Kinney * Ava Mae Kloiber * Emersyn Paige Klomp (Emersyn - Home Strength) * Ciara Koo * Liam Koopman * Colin Michael Koos * Ruth Goldie Krane * Nathaniel Matthew Kroes * Tyler Reginald Kroes * Alexander (‘Alex’) Terence Lack * Madelyn Elizabeth Lake * Aidan Thomas Lay * Elijah ('Eli') Laymance * Linnea Grace Lee * Reilly (‘Our Little Man’) Cash Lehman * Jenica Ho Leong * Alexander Kosta Lipinski * Michael Joseph Lockyer * Abigail (‘Abby’) Lynn Loebach * Ronald (‘Ronnie’) L. Love, II * Zane (‘Zane-e-man’) Anthony Carson Love * Georgia (‘Georgie’) Lily Lucas * Jordan Lybrand * Samuel George Lynsdale * Aydan (‘Sunshine’) Emmanuel Mabe * Andrea Macak * Daniel Macak * Phillip Macak * Robert Macak * Jennifer Lorraine Macaulay * Andrew Michael Macbeth * David Daniel Macbeth * Stephen Macbeth * Bretton Scott (‘Angel Baby’) MacLeod * Bharat Maddala * Luke (‘Lukie’) Anthony Joseph Maida * Leif Graham Maki * Casey Lynn Mako * Dylan Stephen Mako * Ivy Lynn Mako * Marissa Kay Manning * Hodges Chip Manross * William (Jacobsen) Manross * Lorelei Lea Marks (‘Sweet Pea’/‘Pumpkin Eater’/‘Boo Bug’) * Jay R. Marlow * John Patrick (‘J.P.’) Marr-Sisan * Hannah Morgan Marshall * Logan (‘Logie’) Wade Martin * Baylee Mason * Porter Mason * Szel Mason * Michael Anthony Masterson * Jakob Oliver (‘Ollie’) Mastin * Paul Matthews * Stasha Maxwell * Christian Nicholas May * Sarah Ann McColl * Kaylee Sue McCorkle * Larissa Jean McCorkle * Patrick Rowan George McCrone * Mary Kate McDonnell * Thomas Patrick McDonnell * Justin A. McGirt * Jack Christopher McKee * Nathan James McKenzie * Nancy Ellen McLallen * Sondra Lee McLallen * Emily Paige McNabb * Makayla McPherson * Archie Oliver Michel-Malet * Chrystal Marie Miller * Dace Jade Miller * Kason J. Miller * Swade Jace Miller * Alyssa Lynne Milliken * Sarah Louise Cook Mills * Austin Gray Minton * Jewel Essence Mitchell * Shreya Moholkar * Blake James Molloy * Levi Aron Mooibroek * Ali ('Ali Bugs') Maelaine Marie Moore * Erick ('Bubbles') Dean Moore * Ramon Arturo Morado, III * Jacob (‘Jake’) Lee Morrow * Morgan Sydney Mosby * Steven Leighton Moyer * Rebecca Mullett (sister to Vivien Mullet & aunt to Ruby Gilbury) * Cecilia Lehan Murphy * Cianan De Weer Murphy * Paige Louise Myers * Kalair Mariana Myrick * Doris Navaro * Andrew Evan Neely * Abigail Negrin * Aaron Blake Nethercutt * Laura Neville * Timothy (Chance) New * Brian Robert Nicholls * Janet Nicklaus * Ryan James Nolan * Ryan Thomas Nolan * Brecken Danrek Novotny * StephanyJo (‘Jo Jo’) Ann Noyce * Aiden Tomkins Odell * Rhine Andrew Oliver * Nadia Paola Portillo Olmedo * Quinn Leslie Graham Scholl Orchard * Jessa Arianna Orr * Holly Ann Ortego * Leo Ruddick Osio-Vale * Craig Otterness * Maura oude Lohuis * Megan Paige Owens * Katherine Elizabeth Owings * Chloe (‘Chloe-bear’) Anne Painter * Eric (‘EJ’) V. Palmer, Jr. * Sheila Palmer * Zoe ('Dipsy') Lucy Palmer * Charlie Joon Park * 'Baby Parke' * Emma Rose Molly Parke * Lucy Kingston Parker * Austin Parks-Schoen * Morgan Rachael Parrotta * Antonina Partyka * Nicholas David Pawico, II * Cody Lee Payne * Abbie Leone Pennington * Harvey James Percival * Rishi Viraj Peshawaria * Cameron James Pete * Essey Petros * Jessica Lee Phillips * Loren Ava Picinich * Dahrian Pimentel * Brad Pittman * Samantha Poloka * James (Cayden) Poole * Marshall Daniel Mo Potter * Caris Juliette Pourbaix * Gilly Powell * June Price * Olivia Faith Price * Jacob (‘Baby Bear’) Daniel Procter-Trick * Ava Louise Provoost * Nicole (‘CoaCoa’) Monet Pruitt * Tony (‘Big Man’) Allen Pruitt, Jr. * Emma Purk * Jordon Scott Pyke * Callum Rhys Quinn * Brianna Rakowiecki * Jacob Isaac Rappoport * Taylor Lee Reagan * Debbie Reedy-Voyles * Joseph (‘Little Man’) Blaine Reese * Isabella (‘Bella’) Porras Rehorst * Haley Reid * Elva Björg Egilsdóttir Reynisson * Char'lea Richardson * Julie Rigby * Conner Riggs * Amber Elizabeth Rivera * Derek Kolby (‘Kolby Cheese’) Roberson * Alec Daniel Roberts * Jace Anthony Robertson * Ryan Rodgers * Francisco (‘Panchito’) R. Rodriguez, Jr. * Harmony Alexandria Rodriguez * Courtney Lynn Roehrick * Claire Elizabeth Roland * Rachel (‘Rachelee’) Rollinson * Anne Jaso Roman * Lindsey Anne Ronningen * Daniel Ross * Noah Paul Rouse * Maximilian ('Max') Rubenstein * Sadie Russ * Bradley (‘Bobo’) Steven Robert Ryall * Holly Saldana * Carriejo Marie Sanders * Skylar Elizabeth Saranchuk * Anjali Sardar * Elizabeth (Morgan) Saville * Oscar Finn Scallan-Cotter (aka ‘Oscii Boscii Tchaikovsky’) * Claire Patricia Schafer * Jarred Kainalu Schaper * Abbigail (‘Abby’) Elizabeth Marie Scheiderer * Charles (‘Charlie’) William Scheuerman * Giuseppe (‘Joe’) Schifitto * Zane Suzanne Schmid * Kourtney (‘Special K’) Nicole Schmidt * Jonah Tyler Schuda * Tyler Luke Schuda * Chyanne Scott * Sheridan Scott * Elizabeth Semple * Matthew Sereni * Debbie Shallow * Madelyn Grace Shannon * Cambell Jack Sheets * Kayla Leigh Sheets * Grant (‘Little G-Man’) Thomas Sheppard * Noah Shinn * Cameron (‘Angel Baby’) Lilly Shish * Michael Shoner * Rachel Shoner * Owen Vincent Shuler * Audrey Nicole Shutes * Erika (‘Funny Girl’) Nicole Silverthorne * Joliah Simmons * Owen Reid Simmons * Hannah Caitlin Simpson (‘Our Angel with the Golden Glow’) * Ella (‘Princess’) Jade Sinclair * Glenn (‘Glennie’) Stewart Sinclair, III * Julian George Oud Kendall Skelding * Christina Nicole Slack * James Arlan Slattery * Eric Theodore Slavik * Jessica Anne Slavik * Hailey Mae Smelser * Bradley Shane Smith * Bryan (Sawyer) Smith * Cooper Jye Smith * Endia Smith * Ethan Douglas Smith * Logan Michael Smith * Zachary Louis Span * Brian Thomas Spancake * Truman James Spink * Gabriella (‘Gabby’) Yvette Stack * Sarah Jane Staff * Devon Richard Stants * Sidney Houghton Stants * Alyssa Gabrielle Stapleton * Sonja Natalia Stefanovic * Amanda Stein * Lindsey Amber Stewart * Jordan Leo Stokes * Ryann Marie Stoll * Matthew Tyler Storms * Jessica Nicole Stout * Wyatt Kyle Sutker * Connor Swann * Cassidy (‘Cassie’) Swanson * Keira Sweeney * David Alexander Swetz * Kaydence Deanna Tackett * Isaiah Ryan Taiwo * Christopher (‘Baby Chris’) Nicholas Talley * Makayla Marie Tanner * Alisha May Tansey * Elie Camille Tate * Hannah Lucille Tate * Kassidy Jonette Tate * David Russell Tawn * Alex Krestensen Taylor * Emmilee Victoria Tebeck * Katelyn Meredith Telley * Arianna (‘Ari’) Ivon Tellez * Dakotah Storm Thornton * Rosie Jane Tingey * Rachael Marie Tisdale * Sophia Victoria Torre * Erin Trainor * Jonathan Wade Tranby * Santie Truter * Andrea Trakas * Milos Turanjanin * Lisa Tyslan * Samantha ('Sam' / 'Boopers') Jane Utzat * Max Yorke Vallender * Katherine Mable (‘Katie Mae’) Vance * Carl (‘Carlo’) Lawrence Vanderveen * Stijn van Houten * Amanda (‘Panders’) Dawn Van Pelt * Leonardo (‘Leo’) Cobos Varela * Mon Ami Vargas * Amanda Leigh Vaughan * Sanvi ('Naanoo') Vemula * Maria Verdile * Madison Claire-Elizabeth Vickers * James Matthew (‘Matt’) Vincent * Jessica Drew Vincent * Leonardo (‘Apepe’) Volpi * Findlay Waghorn * Ms. Lam Ying Wai * Master Leung Chin Wai * Janice Lenore Walden * Virgil Freeman Walden * Maryclaire Elizabeth Walsh * Christian Taylor Ward * Dynastie Unique Washington * Logan ('Peanut') Watts * Cole Daniel Webb * Creg Kenyen Webb * Timothy Weber * Josiah Steven Weiberg * Cynthia Carol Weingart * Sierra Rose Wentworth * Anna Krystyna Werbowy * Piper Kier West * Wayland Marshall West * Aiden Joseph White * Benjamin Jerrel White * Samuel (‘Sambob’) Robert White * Mollie Carmel Whitfield * Meghan (‘Meggie’) Emily Wiesner * Gabrielle Anais Wild * Thomas Michael Wildes * William (‘Will’) E. Willardson * Dallas McKenzie (‘Kenzie’) Willey * Piper Olivia Willingham * Dakota Reeann Willis * Connie Lynn Palmes Wilson * Ronne Dartin Yondell Wilson * Jordan Witzig * Sayre Matthew Wood * Courtney Jacob Woodard * Tyler Matthew Woodard * Samantha Grace Woodson * Kristin Lee Wormald * Kaitlin (‘Katie’) D. Wright * Kristina (‘Krissy’) Wydela * Tysen Val Xavier * Nektarios Xirouxakis * Xymhone John Roger * Alma ('Lil' Bun') Mae Yaeger * Amanda Yeater * Tyler (‘Our Little Angel’) Yunes * Margaret (‘Maggie’) Zayas *
* * *
Special Dedication from
The Jeffrey Journey © Helen Baldwin 2009
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